Suddenly becoming a caregiver for a loved one is a difficult job. You have little time to learn everything you need to know about mesothelioma and asbestos cancer. You need all the help and support with mesothelioma that you can get, not only care for your loved one but to sort through the vast amount of information about mesothelioma.
As a primary caregiver for someone with mesothelioma, you need to also care for yourself. It is important to gather all the resources available to you to garner support. The Mesothelioma Family Resource Center has compiled a list of resources to assist you in getting the support you need. While this list is not comprehensive, it will provide you with a beginning.
A non-profit coalition of national organizations focusing on issues of family caregiving. Alliance members include grassroots organizations, professional associations, service organizations, disease-specific organizations, a government agency, and corporations.
The National Alliance for Caregiving created Lotsa Helping Hands after witnessing four years of awe-inspiring community support and response to a family member's serious medical crisis. Seeing how earnestly friends wanted to help, and juggling the difficulty of organizing their assistance, we designed Lotsa Helping Hands with the understanding of how to bring together a variety of social circles and what a resulting community like this would need. We have paid special attention to making this web service intuitive enough to begin using immediately.
Contains articles about issues caregivers face
This national, non-profit membership organization gives support to wives, husbands and partners of the chronically ill and/or disabled.
The National Hospice and Palliative Care Organization (NHPCO) is the largest nonprofit membership organization representing hospice and palliative care programs and professionals in the United States. The organization is committed to improving end of life care and expanding access to hospice care with the goal of profoundly enhancing quality of life for people dying in America and their loved ones.
The Institute is an independent, not-for-profit organization, serving members of the public and health care professionals with information and education about the many facets of caring for the dying and the bereaved.
This online support group for cancer patients, family and friends is a place to get to know others and share your experiences and concerns.
ACOR is a collection of online communities designed to provide accurate and timely information in a supportive environment.