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You Are Here: Getting Help » Patient Resources
 

Mesothelioma Patient Resources

Receiving a diagnosis of mesothelioma is scary. Once the shock has subsided, you realize that there were questions you need to ask, resources you need to find, and decisions you need to make – quickly. Time is of the essence when dealing with mesothelioma. What help is available to assist you during this difficult time?

Following are resources that will help you compile your thoughts and gather information:

What Questions To Ask?

It is difficult to ask all your questions when you first learn of your diagnosis. But it is appropriate to ask your doctor or a member of your medical team any question, no matter how small, at any time. You need to have an open and honest continuing dialog with your medical team. It is a good idea to write down your questions so you can remember them all. Some questions you may want to ask are:

  • What type of mesothelioma do I have?
  • Has the cancer spread?
  • What stage of mesothelioma do I have?
  • What are my mesothelioma treatment options?
  • Are there treatment options you recommend over others?
  • What are the known risks and side affects of the treatments?
  • What are the next steps?

It is always a good idea to take someone with you to your doctor’s appointments. It will give you an extra set of eyes and ears to consume all the information as well as provide you much-needed support. Also, you will have someone to write down all the information you receive for retrieval later.

What Support is Available?

Mesothelioma support groups can be of benefit to you during this challenging time. They have many benefits, including:

  • Connecting with others in the same situation.
  • Sharing resources and personal stories.
  • Social interaction in a safe environment.
  • Learning skills to cope with mesothelioma.
  • Support from those who have been there.

There are many types of support groups, including those that focus on a particular disease like mesothelioma. They have varying formats, from religious-oriented to family focused. You may wish to visit more than one group to determine the best fit for you.

What Legal Documents Should I Have?

It is always a good idea to have your affairs in order, particularly when faced with a diagnosis of mesothelioma, or any other cancer. Some of the documents you will want to consider finalizing include:

  • Durable Power of Attorney
  • Advance Medical Directive
  • Living Will
  • Do-Not-Resuscitate Order
  • Last Will and Testament

It is a good idea to consult with our legal professionals to ensure any documents are written and finalized appropriately.


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